Delaney continues to amaze and surprise us, from the beginning of the week until now she has gained weight, increased eye movement and overall responsiveness. Everyone who has seen her this week has noted how much better she looks. This is important for us to hear since we see her every moment of every day it can be difficult to gauge changes. We of course notice a lot of positive gains, but we just love hearing it from other people too!
We are continuing to grow our support. We are going to receive one of the greatest gifts of all. An old friend of mine, Julie has agreed to provide breast milk that she has stored and won't be using any more for her own children. We had a lovely conversation, and aside from the obvious help it was so nice to connect after all these years. I thought it was so neat that she will be helping feed Delaney! We both observed how Facebook has allowed us to get a "second chance" on relationships that we had or didn't have in our school days.
So next week, we have more appointments with PT/OT, Nurse, and will likely be seeing our Cardiologist again. We have to closely monitor the Coarc and be prepared that further surgery could be right around the corner. We will meet with Dr. Doshi next Monday, it will be good to start getting a better picture about what his plan is for her lungs.
I'm not sure if everyone will be able to see the video, if you can't let me know and I will find another way to post it. This is a Facebook video so if your office, or institution blocks Facebook, then you may have to wait until you are at home to view.
Enjoy!
Please pray for her heart condition to hold out long enough for her to gain enough weight to be strong enough for the surgery and recovery.
God Bless,
B & L & d
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